But we are still alive, at least. No improvement with Ash; she still suffers from great pains every so often, and we are on a three month follow up schedule with her neuro.
As it turns out, though, there is a similar case to Ash's: My beloved niece. For years, she would suffer from debilitating migraines, followed later by stomach pains which were attributed to hormone influxes. Surprise, surprise, the docs were wrong and she actually has Crohn's disease. I am going to have Ash tested for this. Her platelets have been consistently elevated, which indicates an underlying infection or clot; to me, the Crohn's is worth investigating.
Which brings me to my second point: When did doctor's become lazy? When did it become acceptable for them to just assume that pains in the abdominal region are "hormone related"? Why is everything associated with PMS or menstrual cycles? Get out of the rut, people! Just because someone has ovaries does not mean everything that ails them has to do with it! Sheesh!
Anyway, I may have to push extra hard because her neuro seems unwilling to consider anything but migraines, and I am unwilling to settle for that excuse. There is a nagging voice drilling into my head all the time, and it says this is not just migraines. It's called a mother's instinct, and I'm tired of trying to ignore it when it keeps me up at night. It is a pressing feeling, this one.
Update later when I have some kind of results. I am hoping to claim Victory! in the face of ultimate defeat, if that makes sense.
P.S. What do you make of the new President? I just don't know what to even say about him.
29 January 2009
22 June 2008
Wtf?
This really ticked me off this morning for some reason. I'm not sure why, exactly, but it did. Here's the quote that had me fuming:
If that was the case, then all the business-people in the US have been "deployed" many a time.
When I told my kids that their Dad was deployed, they knew full well it meant he might not be coming home. It is a sad fact that many families have to face; it's even more sad that a child as young as three understands that her Daddy is in danger 24/7.
A deployment does not consist of fancy luncheons and schmoozing lobbyists. A deployment does not consist of arguing your position to a bunch of politicians. Get your head out of the sand, little woman, and look around you.
I hate people.
Over the 28 years of her often long-distance marriage to Capt. John McCain, USN (Ret.), she says she thought of herself as a Navy wife whose husband was off on tour—albeit on Capitol Hill instead of somewhere in the North Atlantic. "It was almost like a deployment," Cindy told NEWSWEEK. "What I told the kids from the time they were little is that their dad was deployed and serving our country in Washington."It was almost"like a deployment"? Deployed to Washington? What the f*ck was this chick thinking? Does she not realize that she has now trivialized the sacrifice that many men and women have made? A deployment does not consist of just being gone to somewhere state side. Somewhere where the risk of being shot consists solely in the potential of a drive-by.
If that was the case, then all the business-people in the US have been "deployed" many a time.
When I told my kids that their Dad was deployed, they knew full well it meant he might not be coming home. It is a sad fact that many families have to face; it's even more sad that a child as young as three understands that her Daddy is in danger 24/7.
A deployment does not consist of fancy luncheons and schmoozing lobbyists. A deployment does not consist of arguing your position to a bunch of politicians. Get your head out of the sand, little woman, and look around you.
I hate people.
17 June 2008
MRI
So we got the MRI done yesterday. It was a success, as far as those things go I guess. She did well with the anesthesia and all and I managed to finagle myself a copy of the MRI.
I can't read the MRI, of course; I'm no doctor by any means. I am disturbed by it, however. There are white spots all through it, and with the contrast they turn black with a white aura.
Disturbing. I'll put up an update when we get the results on Friday.
I can't read the MRI, of course; I'm no doctor by any means. I am disturbed by it, however. There are white spots all through it, and with the contrast they turn black with a white aura.
Disturbing. I'll put up an update when we get the results on Friday.
09 June 2008
Headache Diary: Day 3,978.
*Update* Ashleigh's neuro gave her Tylenol with Codeine to control the pain of the Big Ones. I guess we'll try that for now.
Too young? I ran across this article from Britain, and it is a sad, sad article. A young woman, in the prime of her life, cut down because she was 'too young' to have cervical cancer. They told me I was too young for high blood pressure for three years before they said it was a problem. Yet, this young lady is simply too young to have cancer.
It's as though they believe cancer to be discriminating.
Ashleigh had another episode tonight. It was bad. Really bad. Crying for about 45 minutes with these ice pick things and then too tired to stay awake any more.
MRI Monday. Updates then.
Too young? I ran across this article from Britain, and it is a sad, sad article. A young woman, in the prime of her life, cut down because she was 'too young' to have cervical cancer. They told me I was too young for high blood pressure for three years before they said it was a problem. Yet, this young lady is simply too young to have cancer.
It's as though they believe cancer to be discriminating.
Ashleigh had another episode tonight. It was bad. Really bad. Crying for about 45 minutes with these ice pick things and then too tired to stay awake any more.
MRI Monday. Updates then.
05 June 2008
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